Jornal de Carcinogênese e Mutagênese

Abstrato

Experiences of Patients with Cancer regarding Decentralization of Oncology Services at a Tertiary Hospital in the Eastern Cape

Lumkile Wilmot Jojo, Nonyaniso Trustina Nkutu

Background: The cancer burden is a global public health concern associated with high morbidities and mortalities. Low and middle-income countries are more affected including South Africa. Limited access to oncology services contributes to the late presentation, late diagnosis, and treatment of cancer. In the Eastern Cape, oncology services were previously centralized with negative effects on the quality of life of the already compromised health status of the oncology patients. To mitigate the situation, a new oncology unit was opened to decentralize oncology services in the province. Little is known about the experiences of consumers after this transformation. That prompted this inquiry.

Objective: This study aims to explore the experiences of cancer patients regarding the decentralization of oncology services to enhance the quality of life of these patients.

Methodology: A qualitative approach with a descriptive, explorative, and contextual design was undertaken, to get the perspective of oncology recipients following the decentralization of oncology services at a selected public tertiary hospital in the Eastern Cape. After obtaining ethical clearance and permission to conduct the study, interviews were conducted with 19 participants. All interviews were transcribed verbatim against their audio recordings. Field notes were taken by the researcher. The concept of trustworthiness was used to ensure rigor throughout this study. Thematic analysis was done using Tesch’s approach to open coding in qualitative research.

Results: Seven themes emerged: 1) level of satisfaction; 2) waiting time; 3) human and material resources; 4) attitude of health care workers; 5) appropriate treatment and care, 6) access; and 7) improved infrastructural resources.

Conclusion: The majority of patients had positive experiences with the unit. The waiting time was acceptable, and medication was available. Access to services was improved. The staff had a positive attitude.